It seems that from day to day there isn't much change in Evan but once I sit back and think about it, I can see that every day he is a little weaker.
It gets harder for him to get up because it wears him down so much. He is now in bed 24/7 except when he gets up to use the restroom. Getting bathed is really a chore for him. He is beginning to struggle with what is real and what has been part of his dreams. Part of this is due to the pain meds but some of it has to do with the toxin levels in his body. They told me that this would happen. It is really hard for me to realize the reality of what's ahead for all of us.
On the up side, the drainage tube is working great to relieve Evan's discomfort and Hospice has been good to us. My work has been great about all of this, and is allowing me to work from home for as long as I need to. I can see the Lords hand in my life everyday as he pours out blessings upon me and my family.
4 years ago